How to Help
What is Friedreich's ataxia?
Friedreich’s ataxia (FA) is a genetic, progressive neuromuscular disease. People with FA experience issues with balance and coordination of movement that leads to life-altering loss of mobility.
Other common symptoms can include fatigue, serious heart conditions, scoliosis, and diabetes. FA is life-shortening and affects an estimated 5,000 individuals in the United States and 15,000 worldwide.
FARA’s goal is to treat and cure Friedreich’s ataxia.
The FA Community is an active and supportive one. Together, we fund and facilitate research to slow, stop, reverse, and cure Friedreich’s ataxia (FA). We hope there is comfort in knowing you are not alone. Together We Will Cure FA.
Because FARA focuses its funding solely on carefully vetted research, your support directly impacts our ability to advance research toward meaningful treatments and cures for Friedreich’s ataxia. Donations can be made online.
To donate via ACH without incurring additional processing fees, contact info@curefa.org or (484) 879 6160.
Make a Difference in the FA Community
Get Involved
There are many ways to get involved with FARA’s mission and connect with the FA community. From volunteering at an event to advocating in front of lawmakers or even making a donation, every effort makes a difference.
Make an Impact With rideATAXIA
rideATAXIA is a way for people to take action. Whether you’re an experienced cyclist or simply someone who wants to make a difference, rideATAXIA offers people of all abilities a way to join the effort to raise funds for FA research.
From all corners of the world, people gather to rideATAXIA events for friendship, camaraderie, and the opportunity to engage new communities. Each ride features:
- Multiple route lengths to accommodate different levels of ability
- Fully stocked rest stops
- Strong SAG/mechanical support
- Delicious post-ride food
